Finding out that your baby or child has a serious diagnosis is devastating for any parent. Whether it’s your first child, or you’re an experienced parent, the news will hit you like a ton of bricks, leaving you feeling scared, lost and very alone. I have found that hearing from other people who’ve walked in
Our daughter, Hazel, came into the world in October 2012 with a genetic deletion which caused her to be born with impaired vision and cloudy corneas. As first-time parents, we found ourselves in uncharted territory with an infant whose medical scenario is rare enough that it doesn’t have a formal name. Our families have felt
Our son Ollie is three-years-old and the youngest of four boys. He is protected, coddled, and adored by Jake (age 9) and Owen (age 7). He has a playmate in Noah (age 6) who could care less about his “disability.” There is no special treatment from “bro bro No No.” They share a room with
On March 15, 2011, our second child, Finley Ann Fears, was born. After Finley’s arrival, the nurses took her to the nursery so we could rest. We were in a peaceful bliss for about four hours until our pediatrician gave us the devastating news. Finley was blind. We were in a peaceful bliss for about
